Had an excellent and relaxing weekend at home. Kate really enjoyed the baby shower at Belpre. Thanks to everyone who helped and was there!
We got back to the hospital yesterday to find a much smaller Haddie. She no longer looks like a sumo wrestler...she's still a little chubby from her belly but the swelling has gone down in her face, arms, and legs. And yes I know I'm not supposed to call a girl chubby but I'm also not supposed to lie. :)
She remains infection free in her brain and has 8 days until they will reinsert the shunt. She was cold yesterday and the day before so they checked her just to make sure no other infections were anywhere else in her body. So far, she's clear of any other infections.
Since my last blog we have talked with the doctors about Haddie's seizures. These seem to be different than her normal twitches. They aren't full on body convulsions. Its usually just one hand, foot, or maybe her eye. But they do not seem to be hurting her and the doctors agree. The seizures aren't the kind that would further damage her brain either. They have Hadassah on 2 seizure medicines and 1 of the medicines, Phenobarb, really seems to knock her out a bit. We originally asked that they take her off all the seizure meds but since we have seen visual signs of her seizures, we are going to talk with them today about trying a 3rd medication to replace the Phenobarb. We aren't too worried about this but would like to work it out before we go home. It would be awesome if the seizures just stopped completely and we went back to the normal twitches.
So she is improving. She's looking better and is on track. Thanks for your prayers. Hope you all have a great week and if you have time, say a prayer for the family in the link below...they are trying to adopt and it looks like God may be saying yes to that prayer!
Be Our Baby Blog
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ReplyDeleteWe continue to pray daily. Haddie has been an inspiration and has shown what the power of prayer can do. Thanks for posting a link to our blog! Love you all!!
ReplyDeleteHey Kate and Travis - Greetings from CHOP NIICU NE. Just wanted to drop a line to let you know that we think of your family often and pray daily. Haddie is a sweet little love and we're cheering you guys on! Many, many prayers of health and strength!! - Mary, Greg, and Baby Bennett
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