Better Today

Our prayers have been answered today. Haddie is doing better for the most part. She hasn't had any more heart episodes. Last night she started passing gas and pooping some. Her belly is definitely softer today. They started her on 2ml of breastmilk every hour just to get things moving in her tummy.  And to help rid her of the water and swelling they gave her a dose of Lasiks.

So all in all she seems to be a bit more stable today. They will check the infection tonight to make sure it is getting better.

The only matter of concern is that Haddie appears to be having seizure activity. Haddie has always had little tremors or ticks where her body would shake for a bit. They checked her 3 times at CHOP and all 3 times it came back negative for seizures. Her tremors just come and go and probably are brain related but not a real problem. She had some tremors here and they decided to do a video EEG just to check. Infections can often cause seizures. At first the results came back negative but today they say that they came back positive. To us they pretty much look the same as her tremors. But the neurologist has decided to continually monitor her through video EEG and she also put her on seizure medication.

I'm not a doctor. But I don't really consider these "seizures" a problem. I'm not fully convinced that they are real seizures just yet. The nurse told us that often seizures are accompanied with heart rate drop and desats...Haddie has done neither while the neurologist witnessed what she called a seizure. Haddie honestly doesnt seem affected by any of the tremors that she has. So we will just wait this out and see what the continuous EEG reveals. It is possible that when the infection goes away, so will the seizures. Or maybe they won't. The only side effect to the seizure medication is that it can cause problems with breathing. That isn't a problem currently because she has a breathing tube in. Once they extubate her we will have to see how the side effects mess with her. Hopefully they don't.

I guess I'm not too concerned because for 4 months now I've heard how the doctors think Haddie's brain will affect her. Most of them have been off a bit. Neurologist said she probably couldn't breathe, eat, or move when she was born...which she has done and done pretty well. So if she has seizures, we will deal with it and keep rolling. If she doesn't, we will keep rolling. I could be wrong on that but for now I will remain optimistic that these seizures won't be a major problem.

Thanks for your prayers. They are working. Pray specifically that the infection goes away, Haddie gets her swelling down, and that the seizure activity doesn't become a problem. God bless!