Monday, September 15, 2014

Tube or Not Tube



Let's play a game. Take a look at the top picture. That's Haddie and her new cousin Jensen last week. Now look at the picture below. That was taken last night. Do you notice anything different about Haddie?

Yes. She is awake in one picture in one and asleep in the other. Yes, yes, she has a baby cousin on her in one and not in the other. Look a little closer.

Hint: Look at her nose.

Got it yet? Okay, I will just tell you...

Haddie doesn't have the feeding tube in anymore!



Three nights ago Haddie puked up the tube. That happens from time to time. Normally we put it back in. However, Hadassah had puked it up after we had already given her her feeds for the day. So we waited.

Our dietitian gave us a plan a while back that enabled us to take away an NG(feeding tube) feed for every 6 oz of baby food. We got better and better at that and started taking away 2 feeds regularly, then 3. Two weeks ago we hit 4 NG feeds taken away.

So 3 days ago, we left the tube out.  We started feeding her and she hit her full amount by spoon:24oz! She did it. The question remained...could she do it again.

And that answer to that is yes. She did it two days ago and then again yesterday! And she's on track today as well. The hardest part is giving her her medications which are liquid. But if we go slow, or mix them with oatmeal cereal, she does okay taking them.

We are very excited about this. It was a big blow when we had to put it back in a few months ago. We are hopeful that we can keep it out this time!

God continues to use Haddie in mighty ways. I'm not sure very many of the doctors would have predicted that she would be able to do this much.

Thanks for your prayers and thinking of us. God bless!

1 comment:

  1. I have been following Haddie's progress over the past year and I am so happy to hear that the tube is out!! That's great news and I hope and pray that it will stay out!

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