During the first week of church camp Kate took Haddie up to Akron while I was gone and we jumped on a new plan. A plan that seemed rather crazy and didn't make a whole lot of sense. Dr.Enlow believed that Hadassah was too asleep and that could be causing the large amount of seizures. She was having between 15-25 a day and we were having to give her the rescue dose every other day almost. He said that some babies on seizure meds get to a point where they are so relaxed the seizures take over.
So we woke her up. We lowered the Sabril medication and let me tell you...it's working! She stayed with my mom and dad this week and did awesome. The first couple of days she had around 6 seizures. The next day (Tuesday I think) she had around 20. But then she dropped back down for the past three days...to NONE. Zero. Nada seizure.
And...she's become 10x more alert than before. She's reaching, she's grabbing, she's kicking, and she's tracking with her eyes way better! Take a look!
God is good. He answers prayers. Sometimes it takes longer than we want...and sometimes He even says no. But he said yes this past week and we thank Him for that. The plan now will be to continue to lower the Sabril to a lower dose that will work for Haddie. Thanks for your prayers. God bless!