Happy 2nd Butt Birthday

Tomorrow marks Haddie's 2nd butt birthday! Odd to celebrate right?! 2 years ago Haddie stuck her butt out and said goodbye to the tumor and hello to the world...and then went back in the womb to chill for another 2 weeks. We watched all three episodes of Twice Born on PBS which documents the same type of thing we went through at CHOP. Kinda hard to believe that was us. No, we weren't on PBS...we just followed the same path as some of the people on the show. It's also hard to believe that Hadassah is almost two. Time flies when you're having fun...or something like that.

I don't update this often and I guess you can take that as a good sign. Things are going well!  Haddie has been very alert and more and more active these days. We go to Marietta once to twice a week for physical and occupational therapy and her therapists are very happy with how much she is moving. We get her on her belly a lot and support her chest and there's been a few times when she will lift her head. She also will crawl (more like scoot) across the carpet if she's in the right mood. Don't judge us for the rug burn on her head! We need to get her a little head scooter or something.

We are awaiting a couple of tools in the mail that will help her as well. One is hand splits. We are fighting her hands tendencies to want to curl in so the splits will help with that. We are also getting a supine stander which will be a major help. This device will help Haddie put pressure on her legs and will also help with neck muscles. I could try and explain it to you but a picture may be better. (That was a couple months ago when we tried out a stander)

She's eating and drinking well and seems to be gaining weight.

So all in all, life is good. It's always good...even when it's bad. Because we have a God that loves us and guides us and uses the bad for good. I'm really glad he does that.

Hope you all are having a great weekend. God bless and thanks for being our friends.