We
have gone almost 4 straight weeks at home and it's been a lot of fun. But we
knew that there was a good chance Hadassah would need surgery again. We knew it
could happen at any time and so we tried to enjoy every day at home with
Haddie. Today's appointment revealed that Haddie's 4th ventricle has
sealed itself off again. We had thought that Haddie had been acting
very sedated. We also noticed that her eyes barely opened and when they did
open they were not together. We thought it was probably the seizure medication
but today’s CT scan revealed what most likely is causing this.
They
will go in on Thursday morning at 8:30am and attach another tube to her current
shunt and run it to the 4th ventricle. That should produce quick
results and we will know if it’s the ventricle or the medication that’s causing
Haddie to be out of it. Either way it will be good for her.
This
surgery is not very invasive and recovery time could be about a day. Hoping
that’s the case this time.
Kate
will head up tomorrow night and her mom will be with her. I will be staying at
home and getting ready for the Belpre Youth Rally.
Please
say a prayer for us on Thursday. God is good. We are in good spirits and are
hoping this surgery will give us back the wide-eyed, feisty, little girl we
knew before this whole shunt issue came around. If not, we are still very blessed
to have this sleepy little gal who is still a miracle. (As I wrote that last
line she gave me a grunt…guess that means she knows she’s a miracle!)
Praying for your Haddie. She and you are fighting hard with God in front of, behind and beside you. As well as those who love you. We love you and know that it must be incredibly hard. Love you, Robin & Diane Weier
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