Haddie's Home

Last night was a good one. About 9pm Kate and her mom rolled into the driveway with a Haddie in the back seat. She didnt have any more seizures after the one on Tuesday and seemed to be doing pretty good so they let her go.

We both felt a lot better about this discharge than the last one. Haddie may end up in the hospital again...but she's doing good for right now and we will enjoy her as much as we can.

We had a regular doctors appointment this morning with Dr. Tomlinson, who is excellent by the way, and that went very well. Plan to increase her feeds so that she can grow a bit quicker. She's at 8lbs 8oz right now which is pretty much the same as where she has been for the past few weeks. Surgeries and having a big belly have slowed her down a bit.

She seems to be doing pretty well. She is a bit tired but not lethargic like before. We go back to Akron in 2 weeks to check the shunt and also revisit the seizure meds. We think that the phenobarb level is a bit high and that's what's causing her sleepiness.

That's about it. Our goal is to keep her home and enjoy time with her....and try and get into some sort of routine. God is good.