Saturday, April 20, 2013

Road Trip!


After our OSU visit on Wednesday we agreed to have our information sent to Children's Hospital of Philadelphia (CHOP). They contacted us on Friday and asked if we could come on Monday to do a full day of tests and evaluations. We obviously will not turn that down. They deal with 20 or so teratoma cases a year which is very significant. They are also the best in the nation at the fetal surgery if it came down to that.

So Sunday we will hop in car with Kate's parents and make the 8 hour trip. As of right now we are just meeting with them Monday and possibly Tuesday. Whether or not they will want us to come back and stay is yet to be determined.

We are in pretty good spirits and we contribute that to your prayers. God most certainly is in the center of this. We met Dr. Rink on Wednesday and we asked her if teratomas could be hereditary and what causes them. She said they are not hereditary and that they don't know what cause them...they are rare. Then she said "It's like getting struck by lighting. And for some reason God gave this to your family because He knew you could handle it." I'm not sure about all of that but we do know this...we can handle this because God, family, and friends like you strengthening us. Please keep our little Frogger in your prayers.

O...and some of you have asked if we actually plan on naming our baby Frogger. I don't want to be too sarcastic here so I'll just say...no. Kate's brother gave the nickname when he first saw the 8 week ultrasound picture. And since we are trying to not find out the sex before the baby is born...Frogger stuck!

We will post on Monday night to bring you up to date. I know some of you might be interested in where we are going and what our options our. Below is a link to a video series produced by CHOP on how they deal with teratomas. Please keep in mind that we have a SCT type...and honestly...I think that is a blessing. See ya!

http://www.chop.edu/video/teratomas/home.html



No comments:

Post a Comment